Rhabdomyosarcomas

What is Rhabdomyosarcoma (RMS)?

Rhabdomyosarcoma (RMS) is a rare, aggressive form of cancer that typically affects those under the age of 10. It affects the soft tissue, such as muscles, in the body. RMS is often found in the head and neck, arms, legs, chest, abdomen, and reproductive organs. It is the most common soft tissue sarcoma in children.

Risk Factors

Most cases of RMS occur in patients with no known risk factors. In some rare cases, it may be linked to certain chromosomal changes or genetic syndromes.

Symptoms and Diagnosis

RMS can cause swelling, pain, or a lump in the affected area. It may also cause other symptoms, depending on the location of the tumor. Diagnosis of RMS usually involves imaging tests, such as an ultrasound or CT scan, as well as a biopsy.

Treatment

Treatment of RMS typically involves a combination of surgery, chemotherapy, and radiation. Prognosis for RMS varies depending on the location and stage of the cancer. When caught early, it is typically treatable with good long term results.

Tips for Coping

Facing a diagnosis of RMS can be overwhelming for families. Here are some tips for those supporting a child with RMS to help navigate the complex journey.

• Stay informed - Make sure to stay up to date on your child's diagnosis and treatment plan.
• Be supportive - Offer reassurance, encouragement, and understanding to your child throughout their treatment.
• Ask questions - Ask your healthcare provider any questions you may have about your child's diagnosis or treatment.
• Accept help - Don't be afraid to ask for assistance from family, friends, or support organizations.
• Take care of yourself - Don't forget to take care of your own emotional and physical needs, too.